Here’s a nice story (with video) about a doctor who is climbing Mt. Kilimanjaro to increase awareness and funding for my medical condition, HHT.
There’s more on HHT.org:
Scott is a part of a family of five generations of HHT patients, including his three children. Scott’s hope is that his climb up Mt. Kilimanjaro will help to increase the awareness of HHT. Currently, 9 out of 10 of the HHT population (68,000 US citizens) are not yet diagnosed due to widespread lack of knowledge by medical professionals and, therefore, are at risk of stroke, hemorrhage, and death.
Given Scott’s history of anemia and the presence of a pulmonary AVM, he debated whether or not to attempt this climb. “It seemed worth a try” states Scott. “The HHT Foundation and the doctors interested in this disease have done great things for people with HHT, including most of the people in my immediate family. Studies that have been performed have taught us a great deal about the natural course of the disease as well as treatment options for it.” Scott further commented.
Cool story. I definitely would not have the balls to rock Kilimanjaro, probably even if I didn’t have da HHTizzle. Special Osler-Weber-Rendu props the the good doctor!
Matt Marks Music 
I am researching blogs on HHT, and found this — written about my son, Scott. Our family has been greatly impacted by HHT, and thanks to so much interest by the health-care professionals at the HHT Centers of Excellence worldwide, my family members have seen drastic improvement in their condition… go to http://www.hht.org to learn more!
Gwen Olitsky